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My experience is that chronic TBI is really not understood by physicians, not is it being adequately addressed in medical training.
I am a VA pathologist (MD/PhD) and a survivor of severe TBI at age 18. It took 13 years for me to diagnose myself and 16 more years to find the therapy I needed to overcome my subtle but very real cognitive impairments.
I had little to no direction, even when I specifically sought it from the very best well-meaning rehab physicians.
The DoD and DVBIC conducted a conference in 2009 about cognitive rehabilitation in mild TBI. They brought together the best neuropsychologists in the field of cognitive rehabilitation. I found their recommendations very helpful in my search for the help that I needed. Yet, I have not found a physician, VA or academic, who is even aware of this conference nor its recommendations.
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If you had to do it again, would you work at the VA or DoD?
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